The Lighthouse Projects are clinical services for individuals with chronic diseases/disorders such as epilepsy, haemophilia, and bipolar disorder. The organization is a partnership between a number of other organizations – RSCI, HSE, eHealth Ireland, Epilepsy Ireland, Beaumont Hospital and Ergo. The projects provide many positive outcomes and benefits for patients as well as their associated healthcare professionals.
Providing Individualized Services and Care in Epilepsy (PISCES) is a Lighthouse Project with a number of partners including HSE, eHealth Ireland, Epilepsy Ireland, RCSI and Beaumont. The PISCES Project is about using technologies to promote a model of precision, proactivity, and personalized healthcare for the more than 40,000 people with epilepsy across Ireland. However, in the past, there was no way for patients, academics or clinicians around Ireland to record their medical details electronically, creating numerous problems for staff and the patients served.
The solution that was developed is an Electronic Patient Record (EPR) and Patient Portal App focused exclusively on the needs of epilepsy patients. The patient portal is a mobile-first, cloud-based application. No matter where care is delivered, information can be collected, added to the care record, and accessed by the care team regardless of geographic location or care setting. The project also involves the development of a BI solution which enables clinicians to securely use aggregated patient data to analyze and gather insights for the wider patient community to improve on their care. As stated by one of the projects healthcare workers:
“I think it definitely is a step of independence for a lot of people that don’t have that at all. They feel like they are kind of controlling in some way an illness that you can’t control at all.”
Clinicians now have a streamlined view of patient information through the Electronic Patient Record (EPR) – a single source of truth where all patient medical information can be recorded and accessed from anywhere nationwide. As part of the EPR, genetic data can be easily interpreted and documenting decisions and agreed actions have been simplified.